Aphasia Rehab ended.
Nobody warned
you what would
happen next.
Not quite his wife. Not quite his nurse. Certainly not yourself. Stuck somewhere in the gap between.
Aphasia Rehab ended.
Nobody warned
you what would
happen next.
Not quite his wife. Not quite his nurse. Certainly not yourself. Stuck somewhere in the gap between.
We See What You're Carrying
The things you haven't said out loud yet.
Guilt
"Why do I feel so angry when everyone says I should be grateful?"
Grief
"I miss him and he's right there in the next room."
Fear
"What if this is as good as it gets for both of us?"
Anger
"I resent what aphasia took from us and I hate that I feel that way."
Isolation
"Nobody around me actually understands what this is like."
Exhaustion
"I don't know how much longer I can keep doing this."
They handed you a list of communication strategies.
What you needed was a way back to yourself, and to him.
After months of rehab, they sent your husband home. A packet of papers about supporting him, a list of communication strategies, and a few tips and tools to make his life easier.
Nothing for you. Nothing explaining that this was the start of a new job with no training and no end date.
You deserved a roadmap, so that's exactly what we built.
We See What You're Carrying
The things you haven't said out loud yet.
Guilt
"Why do I feel so angry when everyone says I should be grateful?"
Grief
"I miss him and he's right there in the next room."
Fear
"What if this is as good as it gets for both of us?"
Anger
"I resent what aphasia took from us and I hate that I feel that way."
Isolation
"Nobody around me actually understands what this is like."
Exhaustion
"I don't know how much longer I can keep doing this."
They handed you a list of communication strategies.
What you needed was a way back to yourself, and to him.
After months of rehab, they sent your husband home. A packet of papers about supporting him. A list of communication strategies. Tips and tools to make his life easier.
Nothing for you. Nothing explaining that this was the start of a new job with no training and no end date.
You deserved a roadmap, so that's exactly what we built.
We built the roadmap you should have gotten on day one.
Five years ago I got on a Zoom call with a family. A wife who had been searching for answers for a year and a half. Her husband had been discharged from rehab, but he still couldn't express himself to her. She still couldn't get through to him, and somewhere in the trying, she'd stopped recognizing herself too. She didn't know where to go from here.
I had seen this gap over and over before, in my thirty years of sitting across from couples after a stroke changed their lives. The moment where she stops recognizing herself.
So we set out to build what she needed. A roadmap back to herself, and back to him. A guide. And a community of women to walk alongside her who understand what she's carrying.
The Care Partner Collective exists because of her, and all the women exactly like her. And the Care Partner Compass is the first step.
Here's where you start
Ten minutes. A few honest questions about where you are right now.
For some of you, the answer is learning what's yours to carry and what isn't.
For others, it's finally knowing how to talk with him instead of guessing.
For every one of you, somewhere in there, it's finding your way back to being you.
You'll get a real starting point, not more generic aphasia caregiver tips to sit in your downloads folder never to be looked at again.
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